This is a condition that causes your bones to get weaker and be more likely to break. Alendronic Acid Has Destroyed My Life (Everything About Alendronic Acid & When To Stop Taking It) by Reana Jean Cuevas You can only stop taking alendronic acid when your doctor says so. My specialist came back to me a month ago to tell me I should take AA from now on so I started taking the weekly pill 4 weeks ago. At which point he told me that NICE guidelines indicated that he had to prescribe alendronic acid, and he could only move me to a different drug if it didnt work. I was prescribed alendronic acid as my DEXA scan showed mildish osteoporosis when I started arimidex. Please talk to your doctor about this. I got a book on osteoporosis from the library and it explained against taking alendronic acid and any other medication that contain biphosphates. They are ok and work fine for first few years ! The GP has been renewing this prescription although I now read a patient only needs to take for 2 yrs max! they mask the crumbling bones within and only show the outer bone growth, I have decided I really dont want to take these any more but wonder if there are side effects. Your body naturally breaks down old bones and replaces them with new bone tissues to support your skeletal system throughout life. This was before I started checking and researching EVERY drug I was told I needed. Itching in my left shoulder/arm, have gained weight and my mood has changed. I also went willingly and happily to the gym twice a week and did weekly pilates. Despite the doctors assurances that it wasnt addictive, I became addicted. H411 (50%): Toxic to aquatic life with long lasting effects [Hazardous to the aquatic environment . I was put on alendronic acid weekly and vitamin d and calcium twice a day . I stopped taking alendronic acid straight away and now wake every morning in the hope that there might be some improvement in my condition. I am otherwise healthy and have never taken any meds in my life. check your brand of alendronic acid may contain gluten, Dear Jane We spoke to the GP & asked if she could come off of Alendronic ,so she did, but now she is having problems with her arms, like a muscle ache. She doesnt have osteoporosis. The hospital talking about infusions once a year but still waiting for a appointment. What is soil degradation in agriculture? Im 62, and fit until I came tumbling of my bicycle 2years ago and damaged my lumbar spine and muscles. Went to ER did EKG and blood work. She doesnt have osteoporosis but they just put her on these. Anyway, I started to take them three weeks ago and I seem to have been fortunate in that I have had very few side effects but, after reading all these reviews, Im not sure I will carry on as Im fit and healthy with no pain. I had been suffering with a terrible burning tongue for eight months and I also had aching legs, this burning tongue I put down to the gallstones I have got. Then one day my body turned to chaos. It got better in the day, but flared up at night for a few nights, then resolved. I have osteopenia aged 58 and my sister has osteoporosis aged 65, she was prescribed Alendronic Acid with similar side effects. It was the most frightening and totally incomprehensible thing to have no control over my limbs at all but as I sit and write this, I realise it has become totally familiar. Taking alendronic acid for at least a year can halve your chances of fractures in your wrist, hip, or spine when youve entered the menopausal stage. Hi just wondering how your getting on with the alendrolic acid? Even before Fosamax was introduced in 1995 as a superior osteoporosis treatment, jaw osteonecrosis has been linked to the bisphosphonate drug family. It's harmful if you suddenly stop taking it without a proper assessment from your healthcare provider. they can have the opposite effect ! document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Subscribe to newsletter Im just another person looking for help with my bones, having been told by my doctor that there is no alternative to Alendronic Acid. The drug helps build up bone and prevent bone loss. Im so sorry to hear your situation and how difficult things are for you. As I sat up from the bed my head started to pound. https://info.mhra.gov.uk/drug-analysis-profiles/dap.html?drug=./UK_EXTERNAL/NONCOMBINED/UK_NON_000837661002.zip&agency=MHRA Alendronic acid | C4H13NO7P2 | CID 2088 - structure, chemical names, physical and chemical properties, classification, patents, literature, biological activities . I had a complete hysterectomy 24 years ago but could not tolerate HRT therefore was susceptible to osteoporosis but I had slipped through the net according to my doctor and only got a dexa scan in August 2017. In case of severe allergic reactions and poisoning on your first dose, please call your doctor or emergency help immediately. My worry at the moment is that I need a new crown in my teeth and do not know if this permitted and if I go ahead will it affect the health of my gums. Alendronic Acid Has Destroyed My Life. The Royal Osteoporosis Society website is very detailed and useful, with info on exercise you should do more of it which must be weight bearing more so than just walking and promote balance. She was given physiowhat a mistake that was.After fighting to get her x rayed, the doctor phoned her and said that I was right and she needed a hip replacement, her hips had crumbled away. I took them for two Sundays and my legs became painful,Dr said to continue and go back in 2weeks so I took one yesterday and today I feel breathless and giddy. Back to see the same neurologist whose diagnosis this time was that my muscles were very tight so I must be stressed, and if I wasnt already taking it, he would prescribe Seroxat! I called my doctor and will go in tomorrow morning, even though pain resolved. The medicine your doctor has advised you to take, alendronic acid, is one of the bisphosphonates and is given to strengthen fragile bones. Hi You should be able to have a dexa scan every 5 years. In a typical nanoconstruct, alendronic acid is conjugated with hydrophilic head moiety of phospholipid that has an ability to self-assemble with hydrophobic polymeric core through its hydrophobic long carbon-chain. I expect only the shareholders are enthusiastic about it! No other cause but the medicine . But no issue with my teeth. Have been on it a yr. Was ok i think, but disabled badly with fatigue anyway, so hard to know. I Have been taking Alendronic Acid Tablets for 11 months now. Are there any better options to AA which people have found?? Small blisters on various areas of my body. Ive been reading all the posts on this forum THINK I might stop altogether does anyone else get these symptoms. reading all of your comments I will not be taking another one of theses tablets . Its bad enough living with PBC and all that entails for the rest of my life, but to go through what all of you good people have gone through NO WAY DANNO! Alendronate is the drug we know as Fosamax. Thank you for your comment. I chose the infusions and, after two infusions, the Pagets was seen to be in remission. Ive only had one tablet of the Alendronic Acid yesterday, but seem to have quite a few of the side effects so wont have another again, and am miffed to see that people have problems for weeks even after one tablet. Anything more and pressure builds in my head, I feel lightheaded, my ears ring and my muscles jerk happily away by themselves. Already taking Adcal D3 and steroids. Both. For alendronic acid Common or very common Gastrointestinal disorders; joint swelling; vertigo Uncommon Haemorrhage Rare or very rare Femoral stress fracture; oropharyngeal ulceration; photosensitivity reaction; severe cutaneous adverse reactions (SCARs) Side-effects, further information I just want to feel better. For a once health, fit woman shes a frail person now who cant walk and has bladder/stomach problems. Other symptoms include numbness of the lips which are also dry and sometimes numbness in the chin. There is nothing I can do to stop the shoulder pain, and lower jaw pain, or the chills I get. Reading all above, i think i will put myself on a little break, just to see if there is a difference in my condition overall. ). My doctor didn't mention the gastrointestinal issues when prescribing Alendronic acid and neither did she mention alternative ways of improving my situation. I urge you to Look into his work for yourselves. if the side effects persist to contact him again Due to Covid you cannot see a GP I asked for a telephone call but was told it would be at least 2 weeks before I could get an appointment Ive decided not to take my more tablets. I also are very intolerant to any meds but my doctor had at last convinced me to trythis and suffice to say I will not be taking any more. Hello I am 66 and like many of you am hating taking this drug, I had breast cancer 4 years ago,so am still taking Anastrosil as it was Hormone related,which in turn apparantly helped causing bone density loss, so ws then diagnosed with osteopenia She is currently in a lot of pain when she walks. I have been on Sertraline 70mg for a few years and as I have asthma my inhaler has been changed to Beclmetasome 100/6. I am not in your age group Jane bit I can appreciate Yor feeling left out. I have had 7 weeks off work with a fractured wrist and another week off with feeling poorly due to AA (with no pay as Im a self employed carer) and need to feel fully fit before returning to work. There was an intense pressure in my head and I felt the muscles in my arms, legs and torso being pulled tighter and tighter as if by elastic and then I started to jerk. Does anyone know the scientific evidence for Alendronic acid and what it does to the body that makes so many people feel achy and dizzy? Without the support of new bone tissues, your bones become more porous and fragile, making you prone to bone fractures. Stop taking your next dose if you experience rash or hives, swelling of your face, lips, or tongue, and trouble breathing. Looking back over the past four years of this journey, I realised that whenever I took any other tablets my symptoms worsened dramatically. Firstly, the potential gastric problems, secondly osteonecrosis of the jaw, and thirdly the suggestion that the quality of the bone created by the drug is not as good as normal bone. I feel cold inside all the time and the headache is miserable. I will make sure I get it. My life coaching business came to nothing I am unable to work. These chemicals were developed in the 19th century but were not investigated until the 1960s for bone metabolism. When i DID start researching, after being on these meds for about a year I decided the risk just wasnt worth the POSSIBLE gain and stopped taking it. I wonder if it might be something that could help you Ive attached the link to the video below. Alendronic Acid is used in the treatment of osteoporosis. This is just too weird. The dentist told me there was no possible way the drugs had anything to do with my teeth getting loose, and it was probably just poor dental hygiene, in spite of the fact that I was 56 when these problems STARTED and 63 when I had to give up and pull the last ones. Put on strong doses of steroids. muscle cramps or spasms, a tingling sensation in your fingers or around your mouth - these can be symptoms of low calcium levels in your blood. Some people, as early as the age of 35, experiences loss of average bone density resulting in weaker bones. have been taking the drugs, with 3 years seen as a threshold point for an increased likelihood of adverse effects.